Hey all,
Ok anyone who reads this. Today is Sunday January something. I'm currently debating going to church. Do I go. do I not? hmm. I still have time to decide. I am home alone. no fam around. no friends. Just me and the meow. Who am I kidding? I don't have any friends. Ok so this week went as such. Monday, Dr Sperry, EMDR I really felt like I wasn't even in the room. I wanted to deal with a thought about hurting myself and that I should only feel pain. It didn't work. I felt so far away and empty. Tuesday I cleaned my room. If you knew me you would know how much of a mastery skill that is for me. Wednesday, Wilkie, stupid sometimes therapy is pointless and accomplishes zero. Thursday I slept all day. I also got in a fight with my mother. Friday dietary, Granola tried to convince me that I am the one making my choices and that I can recover period. If I want.... She also tried to convince me The ED lady knows what she is talking about (Frankly I think JS is full of BS) I also died my hair. Saturday I ran errands with stoneface. I also spent three nights driving aimlessly around my fast food infested town trying to convince myself that I could eat something. I needed to eat anything. That I deserved to spend a bit of money taking care of my needs/wants. I failed. I failed at this week. I didn't accomplish anything. So now its sunday. Church would be my best bet. Sacrament meeting at least. Except now my damn meds are kicking in. So I am going back to bed with my puke bowl, diet sprite and heating pad. Autoimmune autonomic Failure/POTS and Mental health illness do not play well together. In fact they hate me and each other.. Why do I refer to my illness and body as separate enemies. I have a serious depersonalization disorder. I am all ONE person, ONE body. Sheesh Riss, pull your shit together. You need some kind of intervention. I am wondering if I am present? Blogging while dissociated is new for me. I should probably erase this but I won't because that's what this new year is about. honesty. Being honest with myself, my team, and you all the world. I am however going to stop. I will come back later.
Ramble through the empty
Where did I go? Can I get back?
1/19/2014
1/11/2014
Write it down??
This Holiday season has been good, it has been bad. Mostly It has been hard. I have told all of the internet world that I am in trauma recovery. I am in intense EMDR/ trauma processing therapy. I am also in stage 2 DBT therapy for my general mental health, (or rather a lack there of.) I have recently come to the conclusion that I am pretty much nothing. I deserve nothing. I have nothing to offer. I am floating through this life trying to convince others of my worth. How can I convince them of my worth when I have none? Is this the reason I have been seeking therapy? Is it even possible to rehabilitate a nothing? I am starting to wonder. I have often said that I believe that all people are important, that all have a story worth sharing. The thing is I meant everyone else. I have never considered myself worthy. So many people ask me why. Why, Rissa? Why are you the exception to the rule?
Here is my answer. I'm not. I'm not special, talented, or smart. I'm not beautiful, thin, or healthy. I can't play a sport, an instrument, or poker. I don't cook, clean, raise children or work. I don't contribute to the society I live in. I am not really even trying. I am lost, sad, and lonely. I'm angry, sarcastic, and judgmental. I have never accomplished any thing of any importance. In fact most of my life I have hidden in a dark hole. I wonder though if I'm alone.
How can other people look at me and tell me the opposite to all of these adjectives ? I am also completely clueless. The problem with all of this is. Though I feel this deep in my soul. I have a equally deep, but opposing belief. I believe in god. I have faith that Jesus Christ died for not just my sin, but my suffering. I have an unwavering belief in the love of my savior. I feel his love. I want more than anything to be worthy of this blessing. I can not yet reconcile these two parts of me. I am so far from perfect. I am so far from feeling worth in anyway. I am hoping that I can find where I got lost. That if I can find where I left who I should have been. I may be able to become who I am supposed to be.
My therapists Dr Sperry and Wilkie, have asked that I think about writing down what I remember, and process so that the secrets come into the light. I don't know how or when that will occur. I am thinking about it though.
This is your invitation to join this hike into the land of disturbed. Again I am giving myself way too much credit. So in honor of this walk into the honesty forrest. The first rock(okay, it's a boulder) that I have stubbed my proverbial toe on is this. I am terrified.
Here is my answer. I'm not. I'm not special, talented, or smart. I'm not beautiful, thin, or healthy. I can't play a sport, an instrument, or poker. I don't cook, clean, raise children or work. I don't contribute to the society I live in. I am not really even trying. I am lost, sad, and lonely. I'm angry, sarcastic, and judgmental. I have never accomplished any thing of any importance. In fact most of my life I have hidden in a dark hole. I wonder though if I'm alone.
How can other people look at me and tell me the opposite to all of these adjectives ? I am also completely clueless. The problem with all of this is. Though I feel this deep in my soul. I have a equally deep, but opposing belief. I believe in god. I have faith that Jesus Christ died for not just my sin, but my suffering. I have an unwavering belief in the love of my savior. I feel his love. I want more than anything to be worthy of this blessing. I can not yet reconcile these two parts of me. I am so far from perfect. I am so far from feeling worth in anyway. I am hoping that I can find where I got lost. That if I can find where I left who I should have been. I may be able to become who I am supposed to be.
My therapists Dr Sperry and Wilkie, have asked that I think about writing down what I remember, and process so that the secrets come into the light. I don't know how or when that will occur. I am thinking about it though.
This is your invitation to join this hike into the land of disturbed. Again I am giving myself way too much credit. So in honor of this walk into the honesty forrest. The first rock(okay, it's a boulder) that I have stubbed my proverbial toe on is this. I am terrified.
12/16/2013
Writer...right?
I was visiting with Tree last week and she said something that I may have taken offense at. No, offense is not the correct word. Perhaps, pesky is more apropos. We were talking about therapy assignments and the grating nature of them in-general. I was saying how a certain journaling assignment was distressing. Her comment “Well C, that’s because you’re not a writer. You're just not very good with words.” Hmm, okay I thought that stung a bit. The thing is she is right. I am not good with words. I am not good with most any kind of words. Does that mean I’m not a writer? I have horrific handwriting. No one could read it even if they wanted to. I have a very hard time with the volume of my voice. I have been told more often than not to be quiet. I struggle with knowing what words are appropriate for any given situation. I can’t spell to save my life. I am horrendous at BOGGLE, scrabble, bananagrams or any other alphabet stringing games. I can’t even finger spell. I nearly had to give up ASL just because when a person is finger spelling I can’t follow. Luckily, for me most deaf folks are forgiving. I am whole heartedly dyslexic. Numbers are just as bad. Everyone in the room who has dyscalculia and dysgraphia raise your hand.
However, I love words. I love ideas, etymology, linguistics and how we use them to communicate. We tell stories, legends, history all with words. I find it fascinating and amazing. I love how in some languages they're are words that can’t translate. I am amazed that someone in the beginning of time picked up that first burned stick. Maybe they put their finger in sand, or blood and started to communicate. I think those first people had so much to share. First in pictures, or hand prints on walls. Then in scratches, lines, suddenly three lines together meant something. On and on until now. Until me, where I am sitting in a room connected to the whole world. With a box that is made up of letters, lines, dashes and dots. To me that is miraculous.
I am a reader. I absorb history, fiction, nonfiction, and random facts like a sponge. I was that kid the one who could be found hiding in the stacks for hours. I read the encyclopedias, dictionary, and almanac. It was how I escaped. I had only one true safe place, my mind, my imagination. When my body could not escape my mind took me away. Books were vital. I felt so alone. Stories kept me alive then. They kept me alive through cancer, chronic pain and illness. Books have at times been my only friends.
I believe that stories are important. I believe that all people have stories to tell. Now, I don’t like some people’s stories. I do find though that even people I dislike, find disturbing, disgusting, or that I hate. They do teach me with their stories, their words. I think that as humans we have been given great responsibility in the use of words. They are so powerful. We cannot only use our senses but we can describe them. To use words, to teach, to comfort or to harm.
As a person whose voice was stolen. I want to say that I may not be a writer. I may not be a speller, or an alphabet stringer togetherer. I don’t really want to be a writer, or a grammatical error righter. I want to be storyteller. I want to be a communicator. I want to be a sponger of stories.
I am changing this blog to that my story. Some of my story is dark. It is painful to share. I believe though that if I put it out there or here? Into internet land that perhaps I can begin to connect to it. To know that it is mine. No, I don’t journal my every thought. I have never thought anyone would care. That anyone would believe. I now know it isn’t about anyone else. Just me. I love you Tree, thanks for making me think. I know that you meant that I have had the same journal for six years. I know that you know me and that I also have more collages in said journal.
12/05/2013
Feeling Feels blech.....
Okay. So Daily Grace is one of my new favorite youtbers. She is teaching me to cook. Yeah so shout out there. All righty down to business. I am in a confusing, odd duckish, emo place, right now. I have told all of you folks that stop by here. (Yes, I know nobody stops here) So, maybe I'm talking to all of my crazy mofo personalities. Wow, could this get anymore stream of consious off topic dumb? Yep I'm sure it can.
So yes, I started EMDR. I fucking hate it. It sucks. I am wondering if stiring the witches cauldron of feels that I have been avoiding since my "trauma" officially stopped, is worth it. Having said that I by no means want to give the impression that the cauldron hasn't been a roiling boil since then. I just avoided it more effectively with ineffective behaviors. Wow, that sounds crazy. I don't understand why it is so important to deal with it. Is than not what life is? Do we as humans ever not have to deal with it. Whatever it maybe. So I deal with feeling sad, shame, guilt, fear, and all other feel adverbs/adjectives by starving, puking, cutting, dissociating, sarcasm, and incongruent facial expressions. Why is that bad? Why is hurting myself not okay? I get that it's different. I can understand that my actions frighten others. Well, their crying, wailing, apologizing, and communication. Freak me out. So can we just agree that these weird feelers god or mother nature( whoever/however you got here.) gave us are stupid? I can say with my brain that I was raped, abused, tortured, brutalized, and all those horrifying things that so many people endure in this world. My brain gets it. I remember. It is not a secret. So, how do I convince the screaming child deep in my heart that it is OVER. Stop yelling! Just stop please, please, pretty please. Please, take your secrets, pain and memories and move out. Leave me alone. This body is not yours anymore. You died. They killed you over and over again. You became me. I know this is not who you wanted to be. I get it. However, making me crazy is doing either of us any good. Furthermore, taking away my voice these last few months, is hurting us both. We are the same. I am you. You were me. Maybe you still are me, is that why you scream? Why don't you have any words. Where are your words? I hate you and your feelings. I can understand words and ideas. You have none. I want to feel peace, joy, love, humor. I want to remember feeling loved and wanted. I want to remember christmas and my birthdays. Where are those memories? You are just pain. You are hate. You are horror. You are reality. I feel only confusion.
That is all that comes to mind after my first EMDR session. In other contradictory news. I got my Temple date, January 2, 2014 I will be an endowed member of The Church Of Jesus Christ of Latter-Day Saints. I know most people are weirded out by mormons. If you weren't weirded out before now this should be a tiny wierd. For some people it is a deal breaker though. So if that is you. That's cool no hard feelings here. No Judgment either, Just because something works for one doesn't mean it works for all. The reason I brought it up though is because in making this commitment and covenant with My Father in heaven is on the flip side of this coin. The feeling that goes with it is excitement, self worth, and mastery. How do I reconcile feelings? Good, bad, ugly or amazing.
So yes, I started EMDR. I fucking hate it. It sucks. I am wondering if stiring the witches cauldron of feels that I have been avoiding since my "trauma" officially stopped, is worth it. Having said that I by no means want to give the impression that the cauldron hasn't been a roiling boil since then. I just avoided it more effectively with ineffective behaviors. Wow, that sounds crazy. I don't understand why it is so important to deal with it. Is than not what life is? Do we as humans ever not have to deal with it. Whatever it maybe. So I deal with feeling sad, shame, guilt, fear, and all other feel adverbs/adjectives by starving, puking, cutting, dissociating, sarcasm, and incongruent facial expressions. Why is that bad? Why is hurting myself not okay? I get that it's different. I can understand that my actions frighten others. Well, their crying, wailing, apologizing, and communication. Freak me out. So can we just agree that these weird feelers god or mother nature( whoever/however you got here.) gave us are stupid? I can say with my brain that I was raped, abused, tortured, brutalized, and all those horrifying things that so many people endure in this world. My brain gets it. I remember. It is not a secret. So, how do I convince the screaming child deep in my heart that it is OVER. Stop yelling! Just stop please, please, pretty please. Please, take your secrets, pain and memories and move out. Leave me alone. This body is not yours anymore. You died. They killed you over and over again. You became me. I know this is not who you wanted to be. I get it. However, making me crazy is doing either of us any good. Furthermore, taking away my voice these last few months, is hurting us both. We are the same. I am you. You were me. Maybe you still are me, is that why you scream? Why don't you have any words. Where are your words? I hate you and your feelings. I can understand words and ideas. You have none. I want to feel peace, joy, love, humor. I want to remember feeling loved and wanted. I want to remember christmas and my birthdays. Where are those memories? You are just pain. You are hate. You are horror. You are reality. I feel only confusion.
That is all that comes to mind after my first EMDR session. In other contradictory news. I got my Temple date, January 2, 2014 I will be an endowed member of The Church Of Jesus Christ of Latter-Day Saints. I know most people are weirded out by mormons. If you weren't weirded out before now this should be a tiny wierd. For some people it is a deal breaker though. So if that is you. That's cool no hard feelings here. No Judgment either, Just because something works for one doesn't mean it works for all. The reason I brought it up though is because in making this commitment and covenant with My Father in heaven is on the flip side of this coin. The feeling that goes with it is excitement, self worth, and mastery. How do I reconcile feelings? Good, bad, ugly or amazing.
11/26/2013
Name Change????
I need to rename this blog so... I'm thinking something more catchy and less depressing. Ok so This Blog is officially under construction.
11/22/2013
Seeds of doubt
So here we are again. Friday. I hate Friday. I'm usually alone. I'm remembering. I hate feelings. I hate memories. I tried so hard to forget. They refuse to stay buried.
I had an experience this last month with members of my family telling me that my mind is playing tricks on me. I hope. It would be so nice to be able to say I made this all up. That I do not remember being raped. I don't remember being tied down and violated. I made it all up. That my family was there at all times protecting me. I am so relieved to know that I was safe. I'm super grateful that the feelings of self hate, disgust and shame are all pretend. That all the times I was cut myself up. That whenever I shove my fingers down my gullet, or fast for days on end. That really that was all in vain. What a crock of shit. They were not there. They did not come when I screamed. They did not protect me. I do Hate myself. I feel disgust and shame. Huge amounts of it. The physical scars, not just my self inflicted ones. They are real. I taught myself to forget. I taught myself to be nothing. Nothing.
I want to disappear. I want to fade away.
I just grew layers of shame. I grew inches of solid black around my heart. I locked up my childhood in a prison of filth. I forced that small child to carry all of her pain in silence. I hated her too. She never ran fast enough. She was never quiet enough. I am still doing it. I'm supposed to be an adult. I would never hurt a child. I would never force a little girl to carry a heart full of pain and abuse alone. I would never starve a child. How could they make me. Why didn't they see? Where were they? They still want me to carry it alone. How? How do I carry something that almost killed me the first time? I'm so full of doubt. I'm still here somewhere right?????
10/20/2013
When I was a kid we used to chant this stupid little rhyme about the weather.
Rain, rain, go away.
Come again another day.
It has so many versions, different people use it in songs. It came to me last night that it is something I used to say to myself to dissociate but it went like this. Brain Brain, go away. don't come back today. I must have used this chant quite a bit because while trying to distract my self from the pain in my face. I could hear myself chanting pain pain go away. I can not deal with you today. Over and over in my head. when suddenly it changed to the little brain rhyme. I wonder how often I chanted away my brain? My face feels like it might explode. I'm wondering about pulling my tooth out with a pair of pliers. I am fantasizing about shoving a knitting needle into my ear. Anything to get some proper pain relief. So no, I will just take more fucking drugs. They can't be any worse right? maybe if I drug myself into an oblivion I won't have to eat. I won't have to munch. I can just be empty. empty minded empty souled.
Tomorrow I begin to see the trauma doc regularly. I hope he can help me because I can't shut it off. I can't make my brain go away lately and I used to be pretty damn good at that trick. Good lord what is happening to me
Rain, rain, go away.
Come again another day.
It has so many versions, different people use it in songs. It came to me last night that it is something I used to say to myself to dissociate but it went like this. Brain Brain, go away. don't come back today. I must have used this chant quite a bit because while trying to distract my self from the pain in my face. I could hear myself chanting pain pain go away. I can not deal with you today. Over and over in my head. when suddenly it changed to the little brain rhyme. I wonder how often I chanted away my brain? My face feels like it might explode. I'm wondering about pulling my tooth out with a pair of pliers. I am fantasizing about shoving a knitting needle into my ear. Anything to get some proper pain relief. So no, I will just take more fucking drugs. They can't be any worse right? maybe if I drug myself into an oblivion I won't have to eat. I won't have to munch. I can just be empty. empty minded empty souled.
Tomorrow I begin to see the trauma doc regularly. I hope he can help me because I can't shut it off. I can't make my brain go away lately and I used to be pretty damn good at that trick. Good lord what is happening to me
9/21/2013
Someone. Anyone,
Kill me. Please.
Put me out of this misery.
Now, would be the perfect time to blow, an aneurysm.
Wow, that almost rhymes. The thing is I am not trying to be poetic. I am merely trying to convince myself that continuing to breathe will be worth it. Its eerie how fast I can see my own end hurtling down on me.
9/20/2013
Now what
I feel so ill. If I start to cry will it ever stop. Will the voice that is screaming ever quit. I remember, I remember screaming, screaming. I remember the leash. I remember. Please god. Make me not remember. I don't want to remember the green walls and the dark. I am so scared of the dark. I don't want to go there. I promise I never told. I never told. They promised. I never told.
9/14/2013
Baby Steps??????
I hope you're right. The new T is okay. I think I spilled a little too much. I am starting to doubt myself. I'm wondering if it's possible to truly have lived my life. Is it conceivable to have lived the life I have and still be alive? I wonder if some people survive through sheer proof that we humans are in products of god. So, that god can say, " do you see? I am here. Aware of all of you. You did not climb from ooze."
I am in no way saying that my existence is more deserving of god's proof. Oh, fuck it maybe I am. I have just noticed that when I talk people's eyebrows start to climb towards their scalp.
"oh, sure, sure you survived cancer. You were in a coma ?? How many people sexually abused you??? Wait you have what kind of illness. trigeminal neuralgia? no that's not possible. You have autonomic neuropathy too. Sweetie, I'm pretty sure you're fucking delusional." Yes, I know. I have never even thought about how much I have done that to other people. I'm sorry about that. I get it now.
I asked the new T what the pros to EMDR are. He said things like, it's fast, its not triggering (as much), you stay grounded. Then he said that the processing happens on the inside. Whaaaa ??? Hang on. I'm pretty sure the whole reason why I'm in a shit storm right now is because I can not process this inside my head. I need to talk about it. I need to tell. I need to tell more than" oh hey I was sexually abused." I have tried that move on fast bullshit. The whole "R, we don't need all the minutiae." " Can't we talk about something else?"
Now, I do not want to talk about everything. I do not need to describe every tiny detail. I do need to get some history straight. I do want to say hey fuckers that douche bag raped me. Maybe that's wrong. Maybe the platform for that discussion has disappeared. I don't care. I DON'T CARE got it. I don't I wish I had the words before but I didn't. I do now. I am hoping that is a step in the right direction. I hope that is my first step. I am pretty sure I have taken many first steps in the wrong direction. I don't really know how much more I have.
9/13/2013
Broken thoughts
Wilkie asked me to make a list of what I wanted to be. Who the girl could have become. She asked me if I knew. I don't know. I am so tired of people telling me that it was so long ago. Is that supposed to help? Am I supposed to know why I feel more broken today than a year ago? I lost that so long ago. Now I'm supposed to walk into a new therapist? I'm supposed to tell him that so long ago someone ripped out my heart and ground it up. Could you please find it and put it back??? I feel so confused. I wrote this in my journal because everyone keeps telling me that I have to move on. That I have to find something to live for. I don't really know that I exist. So maybe its not about me.
It's about her. It is not about how bad it was or how long it has been it is about her. A small girl's spirit that was broken and crushed time after time. It's about how the world went on without her. How her body grew and her mind. How her family never even suspected. It's not about therapy and its not about justice. Not about revenge. It's not about how bad it was or if it is still bad. It is not about growing up it isn't about how her body betrayed her over and over. It isn't about taking back my life. It isn't about moving forward. It isn't about who I am know or who I can choose to be. It isn't about watching her friends grow up and her sisters too. It isn't about being believed. It isn't about staying a child. It isn't about being alone. It's about a little girl with all her hopes and dreams. A pretty little girl who loves to twirl and laugh. A girl who had never felt unsafe. A child full of promise. An innocent baby. Brand new to this world. She was real. She really lived. I see her. I can almost catch a glimpse of her if I turn real fast. All of that gone in a moment. In a quick hard grasp, fingers with dirty nails, pulling and pushing. Ripping her clothes then her body. That was all it took she was gone. Her eyes went dark she held her breath and disappeared. She buried herself deep inside the darkest hole she could. She told herself that there was no hope, or beauty. That dreaming was dangerous. Worst of all she told herself that she was bad. That god made her bad. That he sent her to earth to be punished. I'm sorry. I'm sorry I don't know how to fix this.
Anyway, I start EMDR today. What do I say to him? Uhh yeah hello. I'm your new fucked up trauma client. I hope this isn't too much... Wow, I can't even face myself in the mirror. Why is it when your doing something for the first time that you really really don't want to do your body grows 14 sizes? please god shoot me now
9/01/2013
Bad week
I was so unique
Now I feel skin deep
I count on the make-up to cover it all
Crying myself to sleep cause I cannot keep their attention
I thought I could be strong
But it's killing me
Does someone hear my cry?
I'm dying for new life
[Chorus]
I want to be beautiful
Make you stand in awe
Look inside my heart,
and be amazed
I want to hear you say
Who I am is quite enough
Just want to be worthy of love
And beautiful
Sometimes I wish I was someone other than me
Fighting to make the mirror happy
Trying to find whatever is missing
Won't you help me back to glory
[Chorus]
You make me beautiful
You make me stand in awe
You step inside my heart, and I am amazed
I love to hear You say
Who I am is quite enough
You make me worthy of love and beautiful
I was trying so hard to be more consistent in writing. My life feels like it has been put on hold this past couple of weeks. Okay, my life has been put on hold for years. I'll just say its been pretty crappy.
I don't know very much about the spectrum of dissociation disorders. I do not even know if there is one. I do know that I have struggled with it in the past. I seem to have a pretty big disconnect from my body. I think I also have one from my "identity". However I don't really have any clue who I am right this second. Where that fits into my identity, I have no clue. Here is what I do know.
I know that I have sexual trauma in my past. I know that I have bullying and emotional abuse in my past. I know that I am scared. I am terrified. There is not a word big enough for what I am.
So, what's with the lyrics? Sometimes I can't find the words, or arrange them to mean what I want to say. Music helps me to do that. this song is Called Beautiful. Its sung by Bethany Dillion. When I heard it it touched my lost soul. The part of me that remembers what I could have become. When I say that, I don't really mean a different person/personality. I mean that deep inside my spirit, my heart, remembers what I felt like before. My terror started young. I don't really have many conscience memories of the "first time". I have always said I died. The real me. That she was murdered. That she became my screamer. I remember when that happened. Is it a true linear memory, no, probably not. It is vivid though. The screamer is also clear as glass. I can see her and hear her. Sometimes she gets very loud. Like right now. She remembers being unique. She remembers having to die. I remember. I remember locking her away. Trying so hard to keep her safe. I wanted her to go away. It is her I see in the mirror.
Wilkie wants me to do EMDR. I think I have frightened her. I have said way too much. which is just like me (blah,blah, blah,...) I don't really know. I wish this would go away. I do not know why it refuses to stay buried. I wish someone could help. I wish. I wish. Wishing doesn't work. There is no one coming to save me. They were always right about that.
Wilkie asked me. Rissa, after all you have told me, about the illnesses, the abuse, the rapes. Could there possibly be anything worse? She said, maybe this feeling is a shift in thinking. Maybe the long held beliefs that you hold on to are changing. That would feel very frightening. It would be a very normal reaction to be apprehensive about being okay. Damn, skippity, she is right about that. She is so very wrong about the storm that is coming her way.
What is coming? I don't know. It is going to be bad though, it feels like it might kill me. I have said so often that I want to find the pieces of my broken soul that have been scattered like trash. I started with my spirituality. That has been a hard piece to find, it was ripped away so early. I know now know that god didn't abandon me. In those places he could not enter and the times I had to walk alone he gave me a guardian angel to walk beside me. He gave me a mind that could take me far away. I do not curse god. I only hope to understand. I know someday I will. You know, I always hate when people get preachy on Facebook and blogs. However, since I'm pretty sure no body reads this blog. I suppose I don't care.
On the medical front, there is not much. The Neuroman says the MRI found white matter disease. He also does not think its causing my symptoms. so pretty much he thinks I'm full of shit. So I am taking a whole ton of meds and writhing in pain most of the time. However, I can see my first 3 ribs so that is a super bonus. Now if someone could please explain to me how I can have all the symptoms of autonomic dysfunction, and trigeminal neuralgia, but all of my tests are normal ???????
Dear Lord, please kill me? Please make this stop. If you can't make it stop please let others see it. I could really use someone on my side. I could also deal a lot better with all of this if you would please make me 74 lbs. Yes, I know I am insane. If I can't have any of the good please make this pain visible. Please god, Please help me deal with your will. Let me learn these lessons swiftly. Please carry this.
Wow, okay this blog post is so out of control. let's bring it back together and just say this. It has been a really hard week. I am exhausted. My screaming soul can not contain it anymore.
8/17/2013
Free to choose ???????
Wilkie said something that so many people say to me. " Riss, it seems to me that you fight so hard to keep your body alive." This came after a very long discussion about how I do not identify with this ugly, fat, sick, vessel that my mind and spirit calls home. I have told her how disconcerting it is to stand in front of a mirror and not recognize who the hell is staring back. So, I wondered if I should tell the truth about the physical part. I have never, not once told anyone why I am willing to treat the body when it is ill, or in pain. Granted, if I focus on the pain that is caused by living in a diseased body it is so much easier. Easier to admit that I have no fucking clue why my spirit is so ill. I don't have to admit that my mind is ill and torturing me. Underneath all of that is another reason. One that I said out loud for the first time. I believe that the body god gave me was destroyed. Beaten, raped, and finally deemed used up. Because even though my mind and soul screamed for relief. My body refused to obey. I went back. I didn't run fast enough. I couldn't scream loud enough. Most of all I could not tell.
I do not know what memories I have made up, exaggerated, or happened to someone else. All I know is that there are huge empty spots of things I should remember. I also know that deep inside me is a small child that stands in a corner of my mind with her eyes screwed shut and her ears clapped hared over her ears, Her mouth open in a scream that only I can hear. Is she me ? Is she made up ? I don't know. I don't know if it matters.
So, I told her. I feel like I earned the right to destroy this body. I feel like in every way conceivable, this body has betrayed me. It remains to do so to this day. In my mind it is comparable to the worst kind of criminal. I feel that I have earned the right to return the favor in kind. It betrayed me it has teased and tormented me, into believing that I might heal, physically, mentally, and even emotionally. Only to be forced to give up dreams, passions, desires, and needs. Now I am at war with myself. I will beat, starve, purge, medicate, and exhaust it. Because it is my tormentor. Cancer, Pneumonia, coma, hypothyroid, POTS, those are its weapons. I can only fight with what I know.
The only problem with all of this is my spirituality. My belief in god. I know that somewhere stands beside me a guardian angel. He has done a damn good job of reminding me that my values do not mesh with any of this. That I believe that one day there will be peace. That if I can get through one more day I will learn. I will find all of the dreams, the passions, and my deepest desires will be found. So today is one more day that I made it through the pain. Yes I did it with restricting, isolating, and ineffective behaviors. Today I chose another day in hell. I hope one day I don't
8/12/2013
Please let me repeat myself
I can not tell you enough that living with my aging parents is delightful. However, I can tell you that there are somethings that if I don't laugh at I think I might just kill all three of us.
I have told my father over and over and over. Please, for the love of all that is holy do not, I mean do not touch my clothes while they are in the laundry process. I must be talking to a brick wall. Yes I know that I have a particular way of washing my clothes. I know that they are not his way of washing clothes. I hate coming home after a long day of doctor's appointments, MRI's, poking and prodding to my favorite shirts. shrunk down to a toddler size that I could no more squeeze my foot into then my big ass belly. Then as I try to vent my frustrations to them and try once to convey that my nice clothes that cost me a bunch can not be dried in the dryer. That bras can not be dried on the highest cotton setting. I get a lecture that reminds me that my dear old dad was trying to help his poor sick daughter. Lighten her load so to say. Well, pop if you would listen in the first place we could stop having this convo. I mean really how hard is it to just leave it alone.
Yes, I have OCD. YES I am a basket case. Yes, I am in some pretty severe need of help. NOT with my laundry though. I got that. I don't mind carrying your 25, 50 pound buckets of 30 year old food storage ( sorry Mormon reference ) out of the basement. Even though my sweet ednos, and POT syndrome, and my super fun pain that I can't handle, has me pretty much crawling on the floor. I smiled and said you're welcome. I will say it again Please leave my laundry alone.
7/22/2013
Coming Back..... warning Trigger possible
So this is a recent email to S we were having a discussion about truly being happy or "faking" I am not a supporter of the fake it until you make it theory. I don't believe it happens that way at all. I believe that faking only produces more faking. I want to be real. Anyway I am coming back to blogging after a hiatus. Mostly because I have been unsure of what I want this blog to be. I also have been pretty ill. I want to share my experiences clearly and fully so here is my first entry on the journey. Where to ? I'm not entirely sure.
I'm hesitant to share this because, I don't want to take away from the skill use and mastery that I have achieved. I'm afraid not just of happiness. I'm terrified that while I look and can act appropriate, that my ineffectiveness will be over looked. I can always laugh and make jokes. I'm full of interesting tidbits. Mostly it is all bull shit that I have learned over a lifetime. I have learned to smile through insurmountable pain. I have learned to laugh and lie all while hating who and what I am. I have learned to cover scars, cuts, burns and bruises. Because that is not what people like to hear. I have always been what other people wanted or needed. I learned at a very young age that no matter what the pain you stand up brush it off and go on. Because there is always ALWAYS someone worse off than you. I was taught that I am not just insignificant. But that I will always be unheard. That crying out only brings more pain. That talking about the darkness can bring death. I was groomed and taught to put on a smile because this world doesn't give a shit about what has happened to you. It only cares what you can do for it. I was taught that selfishness is an ultimate sin. Everything I do I do to keep my selfishness in check. Even in the most desperate of times be it cancer,coma, rape, or flashback. Anyone can get me to smile. Because I have learned my lesson well. I understand and I can even take into my heart that I have made some progress that I'm feel like I'm coping a bit better. I will continue to work not because my past or present tells me it gets better ( because for me it tends to get worse) But because my belief is that one day I will get to rest. That somewhere somehow this pain will leave me in peace. I do not believe in "fake it til you make it". I think that is a fallacy. Because I am fake, and all I have accomplished is fake. That I am still a little girl laying gang raped and alone on a floor. Because people always tell me. Brush it off, smile, your life is not hard, it could be worse you could have been born in Africa, lymphoma isn't that bad. You could have breast cancer. Hey being sexually abused happens to lots of people and they're happy. What's wrong with you?? I am so fake that I say all of it to myself. Then I tell it to everyone. All I have made is a mess. I don't understand how people can say to me that I have all the reasons to be happy. I am nothing. I am no one. I don't even recognize my own face. I can be happy because there is not even a me. I know that makes no sense. I wish I could explain it. Please help me not to give up on me. I don't know where I lost my soul. I hope that I can find it. I hope that this is what this journey is about. I have to find out. I have to try. I'm learning slowly that I can use skills to make living easier. That does make me happy. I am learning that this body is really mine not something for the world to use. I hate it. I hate that it is diseased, and disgusting. I hate that I can't abuse it in to submission. No matter how I try. I hate that starving, purging, cutting, and destroying makes me feel so good. Yes, I want to change all of this. I want to accept that being abused over and over is not my fault. I don't really see that because I'm pretty much the only common factor.. But oh well. Sorry I don't really know when this became a novel. It's just how I feel.
Clarissa
I'm hesitant to share this because, I don't want to take away from the skill use and mastery that I have achieved. I'm afraid not just of happiness. I'm terrified that while I look and can act appropriate, that my ineffectiveness will be over looked. I can always laugh and make jokes. I'm full of interesting tidbits. Mostly it is all bull shit that I have learned over a lifetime. I have learned to smile through insurmountable pain. I have learned to laugh and lie all while hating who and what I am. I have learned to cover scars, cuts, burns and bruises. Because that is not what people like to hear. I have always been what other people wanted or needed. I learned at a very young age that no matter what the pain you stand up brush it off and go on. Because there is always ALWAYS someone worse off than you. I was taught that I am not just insignificant. But that I will always be unheard. That crying out only brings more pain. That talking about the darkness can bring death. I was groomed and taught to put on a smile because this world doesn't give a shit about what has happened to you. It only cares what you can do for it. I was taught that selfishness is an ultimate sin. Everything I do I do to keep my selfishness in check. Even in the most desperate of times be it cancer,coma, rape, or flashback. Anyone can get me to smile. Because I have learned my lesson well. I understand and I can even take into my heart that I have made some progress that I'm feel like I'm coping a bit better. I will continue to work not because my past or present tells me it gets better ( because for me it tends to get worse) But because my belief is that one day I will get to rest. That somewhere somehow this pain will leave me in peace. I do not believe in "fake it til you make it". I think that is a fallacy. Because I am fake, and all I have accomplished is fake. That I am still a little girl laying gang raped and alone on a floor. Because people always tell me. Brush it off, smile, your life is not hard, it could be worse you could have been born in Africa, lymphoma isn't that bad. You could have breast cancer. Hey being sexually abused happens to lots of people and they're happy. What's wrong with you?? I am so fake that I say all of it to myself. Then I tell it to everyone. All I have made is a mess. I don't understand how people can say to me that I have all the reasons to be happy. I am nothing. I am no one. I don't even recognize my own face. I can be happy because there is not even a me. I know that makes no sense. I wish I could explain it. Please help me not to give up on me. I don't know where I lost my soul. I hope that I can find it. I hope that this is what this journey is about. I have to find out. I have to try. I'm learning slowly that I can use skills to make living easier. That does make me happy. I am learning that this body is really mine not something for the world to use. I hate it. I hate that it is diseased, and disgusting. I hate that I can't abuse it in to submission. No matter how I try. I hate that starving, purging, cutting, and destroying makes me feel so good. Yes, I want to change all of this. I want to accept that being abused over and over is not my fault. I don't really see that because I'm pretty much the only common factor.. But oh well. Sorry I don't really know when this became a novel. It's just how I feel.
Clarissa
7/31/2012
Coming back...
I want so much to come back. Back to where I was better. Where I happier. I don’t think I have ever truly been HAPPY. I have been happyish though, I think. I was doing ok. I was talking, learning to trust, other people and myself, then smack, chronic illness, again. I have never, that I can remember a super healthy person. I am usually battling one virus or bacteria,or some kind of infection. I also battle my mind which often goes rouge. I think this blog helps I am not really very good at it. I hope with some practice I can get better at it. So I am coming back. I hope it is the first step back from where I have been. Where I dove head first after Edog left. I want to come back. I hope I can someday.
6/20/2012
Totally fine
I have no idea why I say this so much. I often mean something completely different. I say fine because I don’t think many people want to know really how I am. I am sure I am not the only person to feel like this. So, you’re wondering why I’m whining ? I’m in the mood for being a whiner. So there is the reason. I made a huge stinkaroo this past week because I was feeling ignored. Ignored by my family, my friends, my therapist, and pretty much anyone who was breathing. The thing is, I think I overreacted a bit. If I am always telling people I’m fine, well what can I expect. What am I getting at ? What is the point ? The point is I can now see where all of my lying has got me. So, I am going to try. Try being the operative word. To tell the people who matter the truth. I really have no clue how I am going to do this. But for starters, I am going to ask for regular therapy from my so called therapist. Yeah, I know super tough
3/24/2012
hey, i got sumthin to say
Here is my problem. I feel lonely. I feel ignored. I feel fat. Fat with emotions that I can't seem to handle, let alone control. I have so much to be grateful for. I have so much to love. Here is the thing. I have so much to say. I feel like I want to start screaming and never stop. I feel so completely alone. I think that is why I have relapsed. I need to quiet that screaming. I need to silence all the words, swirling in my mind.
What I want is to tell. To bitch and moan, I want to be mean and hateful. I want to be angry.
So since no one ever reads this blog I will say it here.
Stone, I am so mad that you think that that I am the one that needs to do everything to keep this friendship alive. I feel used and unsupported by you. I feel like you think that having a friends means the have to do every thing to support you with nothing in return.
Tree, What can I say. I feel used. I feel second citizen.
momma, I hate that you make me grovel. I hate that you think I have no needs. I can't stand that you can't put the fuck computer down and talk to me. You asked me to come over. I hate that I need you so much.
Daddy-o I am so sorry I was born and that I turned out to be such a failure. I hate myself enough for us both.
E-dog I blame you for leaving me in such a mess. I am so sad.That is enough for now. I feel so ashamed sorry everyone.
3/22/2012
dietary-DIEtary
I know that Granola is trying to help, I get it, I do. The thing is that I don't know if I want her help. It feels so, so, so good to step on the scale, and see the number fall. I know that women and men everywhere agree with me. I also know that I am a bit obsessive. Just a bit. I tend to be extremist instead of moderate in behavior. Hence, DBT therapy. I wish that my mind could see my ineffective actions. I wish it would say, "slow down there, sparky. Slow it down." I can't, in fact I wouldn't even know where to start. So I have come to the conclusion that I will keep my team informed. I will try to be as honest about what I am thinking, feeling, sensing, and understanding. Try being the key word there. So, ana, Ed, and Ednos, buckle up. Life is about to get bumpy.
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